Autonomous Communities RD Registries

 

The National RD Registry’s general objective is to set up a comprehensive platform where patient - and population-based registries can be harmonised. Population-based registries in Spain are developed by the country’s Regional Health Authorities (Autonomous Communities). Such registries will share common, previously harmonised data and will provide the necessary information to facilitate the implementation of RD-oriented health and social policies and the promotion of translational research.


Rare Diseases registries or health services in Autonomous Communities

 

Andalucía

Aragón

Principado de Asturias

Islas Baleares

Canarias

Cantabria

Castilla-La Mancha

Castilla y León

Cataluña


 


Comunidad Valenciana

Extremadura

Galicia

Comunidad de Madrid

Región de Murcia

Comunidad Foral de Navarra

País Vasco

La Rioja